8/31/2010
Link to Joint Center for Political and Economic Studies
The team of analysts who wrote this very important report include Dr. Dennis Andrulis, Nadia Siddiqui, Jonathon Purtle,and Dr. Lisa Duchon describe the new law as having "the potential to seed, promote and guide diversity initiatives in this country for decades to come". Dr. Andrulis notes the enormous potential for ultimately creating the necessary environment for our multi-cultural society to on an equal basis have access to necessary and basic health care. Getting thgere will require a series of steps, some budgetary in the future, some from the legislative branch of our government and others via Executive branch actions. Thus it is a wonderful report to have as the closing offering of this survey course on health disparities policy. The over-riding recommendation that stikes me regarding the question we posed at the beginning about whether or not we should not strongly recommend that the MLKjr Center for Health Equity continue with its plans for development of the first annual Health Equity Conference to be held in 2011. This report lays out many of the reasons and the parameters we shall use in following progress or regression in our national drive for the elimination of health disparities. So thank you to Ralph B. Everett (President and Ceo of the Joint Center) and Dr. Brian Smedley (Vice-President and Director of the Joint Center Health Policy Institute) for developing this important report. As Dr. Smedley said, "Going forward, policy-makers will have to make the reduction of health inequities a top priority in the implementation and administration of the new law, because doing so is essential to achieving its stated goals of expanding health insurance, improving the quality of health care, and reducing the costs of care."
Fw: Fwd: request from Roger Bulger
From: dennis andrulis <dpandrulis@gmail.com>
To: Roger Bulger <roger.bulger@yahoo.com>
Sent: Mon, August 30, 2010 10:39:12 AM
Subject: Fwd: request from Roger Bulger
Dennis
From: Kendall Alexander <kalexander@jointcenter.org>
Date: Mon, Aug 30, 2010 at 9:34 AM
Subject: Re: request from Roger Bulger
To: dennis andrulis <dpandrulis@gmail.com>, Brian Smedley <bsmedley@jointcenter.org>
Joint Center for Political and Economic Studies
Health Policy Institute
(202) 789 6374
kalexander@jointcenter.org
>>> Brian Smedley 8/30/2010 10:00:26 AM >>>
From: Roger Bulger <roger.bulger@yahoo.com>
Date: Mon, Aug 30, 2010 at 6:17 AM
Subject: Re: new mailing address for you...even temporary
To: dennis andrulis <dpandrulis@gmail.com>
I suggest you look at the blog and decide which path you prefer. If your prefer to have me do it, I can say the piece about the MLK conference. Either way is fine with me, but even if you don't want us to publish your report on the blog at all, I can insert a blog of my own about it and in any case, the future efforts are what I for sure want to be able to discuss with you particularly in the light of your new position.
From: dennis andrulis <dpandrulis@gmail.com>
To: Roger Bulger <roger.bulger@yahoo.com>
Sent: Fri, August 27, 2010 9:35:41 AM
Subject: Re: new mailing address for you...even temporary
hi....hope all is well....have a book to send you...roger
Fw: new mailing address for you...even temporary
From: dennis andrulis <dpandrulis@gmail.com>
To: Roger Bulger <roger.bulger@yahoo.com>
Sent: Fri, August 27, 2010 9:35:41 AM
Subject: Re: new mailing address for you...even temporary
hi....hope all is well....have a book to send you...roger
8/24/2010
Fw: [Health Disparities Policy] New comment on Fw: John Geyman's submission for Health Disparitie....
From: Kimmy kard <noreply-comment@blogger.com>
To: rogerjbulger@gmail.com
Sent: Tue, August 24, 2010 5:30:37 PM
Subject: [Health Disparities Policy] New comment on Fw: John Geyman's submission for Health Disparitie....
Kimmy kard has left a new comment on your post "Fw: John Geyman's submission for Health Disparitie...":
Good thing this is so, hopefully provide fast and effective solutions since many people will be grateful ... in findrxonline indicate that we must all fight against cancer ....
Posted by Kimmy kard to Health Disparities Policy at 8/24/2010
Fw: John Geyman's submission for Health Disparities Policy Blog / with hotlinks
From: Macman <macman@rockisland.com>
To: roger.bulger@yahoo.com
Cc: John Geyman <jgeyman@u.washington.edu>
Sent: Wed, August 4, 2010 8:12:29 PM
Subject: John Geyman's submission for Health Disparities Policy Blog / with hotlinks
Disparities within the U. S. health care system result in serious impacts on access to care for patients with cancer at all stages from screening and prevention to treatment and survival. Access barriers further lead to disparities in the quality of care received. These concerns led the American Cancer Society to launch a national effort in 2007 calling for system reform that will provide "4 As coverage":
• Adequate—timely access to the full range of evidence-based health care including prevention and early detection.
• Affordable—costs are based on the person's ability to pay.
• Available—coverage available regardless of health status or prior claims.
• Administratively simple—processes are easy to understand and navigate. (1) (Sack, K. Cancer society focuses its ads on the uninsured. New York Times, August 31, 2007)
Access barriers take a wide variety of forms and affect many disadvantaged groups within the U. S. population. The single most important aspect of access is the status of the patient's health insurance coverage. (2) (Siminoff, LA, Ross, L. Access and equity to cancer care in the USA: a review and assessment. Postgrad Med J 81: 674, 2005) For all types of cancer, the uninsured are 1.6 times more likely to die within five years compared to cancer patients with insurance. (3) (Ward, E, Halpern, M Schrag, N et al. Association of insurance with cancer care utilization and outcomes. CA Cancer J Clin 58: 19-20, 2008) 8/1/9
The lack of health insurance is much more common among racial and ethnic minorities than among whites. According to the U. S. Census Bureau, when 15.9 percent of the population was uninsured in 2005, the uninsurance rate for whites was 11.3 percent compared to 19.6 percent for non-Hispanic blacks and 32.7 percent for Hispanics. (4) (Income, poverty, and health insurance coverage in the United States: 2005, update.)
These examples illustrate how the lack of insurance adversely impacts patients with cancer across the entire spectrum of care:
• Women aged 40 to 64 without insurance are only half as likely to have had a mammogram within the last two years as those with insurance. (5) (Ibid #3)
• One in four uninsured cancer patients delay or forego care because of cost. (6) (Ibid #3)
• Uninsured African-American women with breast cancer have a five-year survival rate of only 63 percent compared to 89 percent for insured Caucasian women. (7) (Ibid # 3)
• Cancer has become a chronic disease for the estimated 12 million cancer survivors in this country, many of whom have co-morbidities such as heart disease, diabetes and arthritis as well as under-recognized and under-treated anxiety and depression. A 2008 national study found that uninsured cancer patients were three times more likely than their insured counterparts to have not seen health professional in the last year, twice as likely to have no regular source of care, and five times more likely to use the emergency room for care. (8) (Wilper, AP, Woolhandler, S, Lasser, KE et al. A national study of chronic disease prevalence and access to care in uninsured U. S. adults. Ann Intern Med 149: 170-76, 2008)
Under-insurance is another big problem for many patients with cancer, since many insurance policies provide little protection against the rapidly rising costs of cancer care. Two examples illustrate the financial burdens placed on cancer patients and their families even when insured:
• Despite being consistently insured, a 2006 study by the Kaiser Family Foundation and the Harvard School of Public Health found that almost one-half of cancer patients used up most or all of their life savings, while 8 percent were turned away or unable to get a specific treatment because of insurance issues and 3 percent ended up declaring bankruptcy. (9) (Kaiser Family Foundation. Survey of families affected by cancer shows people with and without health insurance suffer serious financial hardships. USA Today/Kaiser Family Foundation/Harvard School of Public Health National Survey of Households Affected by Cancer, November 20, 2006)
• Some "insurance" policies are ludicrous in the extent of their undercoverage—one example is the limited-benefit basic cancer policy marketed by AllState, starting at $420 a year for family "coverage", which pays a one-time benefit of $2,000 if diagnosed for the first time with cancer (other than skin cancer). (10) (McQueen, MP. The shifting calculus of workplace benefits. Wall Street Journal, January 16, 2007: D1)
Do patients with cancer covered by Medicare and Medicaid fare any better than their counterparts with or without private insurance? Here again, their access to care falls far short of their needs. An increasing number of physicians will not accept new patients on Medicare or Medicaid because of low reimbursement. Medicare Advantage plans may impose high cost burdens on patients who are referred to out-of-network physicians and facilities for cancer care, sometimes leading to disenrollment. (11) (Medicare Rights Center. Why consumers disenroll from Medicare private health plans. Summer 2010) Medicaid remains an underfunded porous safety net with many restrictions on coverage varying from state to state. (12) (Ramirez de Arrelano, AB, Wolfe, SM. Unsettling Scores: A Ranking of State Medicaid Programs. Washington, D.C. Public Citizen Health Research Group, April 2007) Medicaid enrollees are more likely to have late-stage cancers when diagnosed, resulting in worse outcomes. (13) (Halpern, MT, Ward, EM, Pavluck, AL et al. Association of insurance status and ethnicity with cancer stage at diagnosis for 12 cancer sites: A retrospective analysis. Lancet Oncol 9 (3): 222-31, 2008) Many oncologists refuse to provide chemotherapy for Medicaid patients in their offices due to low reimbursement, sending them on to hospitals. (14) (Lung Cancer Connections. Caring 4Cancer. An introduction to Medicaid. Web site accessed October 31, 2008)
Because of access barriers to care and other factors in our market-based system of care (based as it is on ability to pay, not medical need), the quality of care for cancer patients in our present system leaves much to be desired for these kinds of reasons:
• Perverse financial incentives pervade our business-oriented health care system. Hospitals and physicians make higher revenues by providing services that are often unnecessary, inappropriate or even harmful. When Medicare reduced reimbursement rates for outpatient chemotherapy drugs in 2005, oncologists switched from drugs that were most reduced in profitability to other high-margin drugs at increased cost but without good evidence of improved outcomes. (15) (Jacobson, M, Earle, CC, Price, M, Newhouse, JP. How Medicare's payment cuts for cancer chemotherapy drugs changed patterns of treatment. Health Affairs 29 (7): 1391-99, 2010) A 2008 study by United Health found that Procrit, a very expensive anti-anemia drug also highly remunerative to prescribing oncologists, was being prescribed for about one-third of patients who were not anemic at all. (16) (Culliton, BJ. Interview: Insurers and 'targeted biologics' for cancer: A conversation with Lee N Newcomer. Health Affairs Web Exclusive 27 (1): W 41-W51, 2008) More than 30 million full-body CT scans are performed each year for screening purposes despite the lack of evidence of benefit or the approval by the FDA or the American College of Radiology. (17) (Brenner, DJ, Hall, EJ. Computed tomography—An increasing source of radiation exposure. N Engl J Med 357: 2277-84, 2007) Over-screening, over-diagnosis and over-treatment of prostate cancer are endemic in this country, without evidence of improved outcomes. A 2009 report of a randomized ten-year trial of 76,000 American men found that widespread screening does not lower the death rate from the disease. (18) (Andriole, GL, Grubb, RL, Buys, SS et al. Mortality results from a randomized prostate-cancer screening trial. N Engl J Med online. March 18, 2009). Dr. Peter Bach, oncologist at Sloan-Kettering Cancer Center and former senior advisor on health care quality at the Centers for Medicare and Medicaid Services (CMS), estimates that 30 to 40 percent of spending on cancer care is of marginal value. (19) (Bach, P, as quoted in McNeil, C. Sticker shock sharpens focus on biologics. News. J Natl. Cancer Inst 99 (12): 911, 2007)
• We have an industry-friendly system of deciding what services and treatments will be covered. Coverage policies are not rigorously evidence-based, and the use of cost-effectiveness as a criterion for coverage decisions is vigorously opposed by industry. Many expensive and toxic drugs are used for indications beyond FDA approval—so-called "off label" use. In 2009, Medicare coverage of off-label cancer drugs was expanded despite the lack of clinical evidence for effectiveness. (20) (Abelson, R, Pollack, A. Medicare widens drugs it accepts for cancer care: More off-label uses. New York Times, January 27, 2009)
• Quality of care breaks down at the interface between primary care and oncology-related subspecialty care. A just-published monograph by the National Cancer Institute documents the scope and magnitude of this serious problem, ranging from lack of communication and collaboration to overlapping and ambiguous roles. (National Cancer Institute. Division of Cancer Control and Population Sciences. Toward Improving the Quality of Cancer Care: Addressing the Interfaces of Primary and Oncology-Related Subspecialty Care. Number 40, 2010) For the best quality of care, cancer patients need to be followed by both groups of physicians working together in their areas of expertise. One study of almost 15,000 survivors of colorectal cancer, for example, found that patients followed by oncologists were less likely to receive influenza vaccination, cervical screening and bone densitrometry, while those followed by primary care physicians reported less screening by colonoscopy and mammography. (21) (Earle, CC, Neville, BA. Under-use of necessary care among cancer survivors. Cancer 101 (8): 1712-19, 2004) Continuity of primary care throughout the care of cancer from screening to survivorship is essential to the best outcomes. We cannot expect subspecialists to care for co-morbidities so common among cancer patients, and treatment decisions often require consideration of co-morbidities, personal and family considerations.
As is clear from the above, access and quality of care are closely entwined and multi-dimensional. Addressing these problems is a complex challenge since they are embedded in a dysfunctional health care system. But that is the subject of our next post, which will consider to what extent the new health care reform law, the Patient Protection and Affordable Care Act of 2010, can remedy these problems.
Adapted in part from The Cancer Generation: Baby Boomers Facing a Perfect Storm, 2009, with permission of the publisher, Common Courage Press.
TAGS: cancer,cancer care, Access and Quality of Cancer Care, Under-use of necessary care, The Cancer Generation: Baby Boomers Facing a Perfect Storm, John P. Geyman M.D., patient's health insurance coverage, lack of health insurance, cancer chemotherapy drugs, Patient Protection and Affordable Care Act of 2010, PPACA, wellness plans, AHA, American Hospital Association, America's Affordable Health Choices Act, America's Health Care Plans
Fw: John Geyman's blog 45: Lessons From the Inevitable Failure of Health Care Reform 2010
From: Macman <macman@rockisland.com>
To: roger.bulger@yahoo.com
Cc: John Geyman <jgeyman@u.washington.edu>
Sent: Tue, August 10, 2010 4:29:22 PM
Subject: John Geyman's blog 45: Lessons From the Inevitable Failure of Health Care Reform 2010
Even though the new law is just entering its implementation phase, we already know how and why it will fail to meet urgent needs for reform. More fundamental reform that more directly attacks the forces responsible for system problems will be required, sooner rather than later. But to be more successful the next time around, we need to learn the lessons as to how and why this last reform effort went off the tracks if we are to avoid making the same mistakes once again. That is the subject of this post.
Here are some of more important ways in which the politics of reform diverted the process from the real goals of reform, ending up instead with a nearly $1 trillion bill that serves corporate interests in the medical-industrial complex and Wall Street much better than Main Street and ordinary Americans.
1. Framing of the issues and the entire political process were hijacked by the very interests that are largely responsible for the system's problems of access, cost and
quality. The opening assumption was that we had to build on the existing system, thereby serving the interests of insurers, drug and medical device makers, hospitals, organized medicine and other parts of the system that would resist structural change. Missing from the subsequent health debate were more basic issues, such as whether health care is a right or a privilege based on ability to pay for just another commodity on the open market, and whether the business model underlying our system is consistent with the long-term public interest. Instead, the language of the debate was dominated on the right by defense of markets as the solution and that government is the enemy, and on the left by such meaningless slogans as "competition" and "guaranteed affordable choice". The debate then devolved to such arcane details as public options, exchanges and triggers, which much of the public found difficult to track and understand.
2. The democratic process was commandeered by corporate money. Corporate interests, intent on expanding their markets through the "reform" bill, pushed their agenda through lobbying, campaign contributions to key legislators, advertising campaigns through disease advocacy groups and Astroturf organizations, and feeding talking points the media (which thrived on the 24-7 coverage of the battle over a year and a half). These examples illustrate this coordinated effort by industry: Industry representatives were often in critical places as illustrated by these examples: (1) (MSNBC. Obama health czar directed firms in trouble) (2) (Center for Public Integrity, as cited in Moyers, B, Winship, M. The unbearable lightness of reform. Truthout, March 27, 2010)
• Elizabeth Fowler, insurance industry representative turned staffer of the Senate Finance Committee, largely wrote that bill.
• Nancy-Ann DeParle, White House Director of the Office of Health Reform, had received $6 million previously while serving on boards of directors of at least half a dozen companies that were targets of federal investigations, whistleblower lawsuits and other regulatory actions.
• By the time the reform law was finally passed, about 1,750 businesses and organizations had hired some 4,525 lobbyists, eight for every member of Congress, at a cost of $1.2 billion.
3. Market failure was not recognized as the wellspring of our system problems. Market advocates were successful in perpetuating the myth that competition in health care markets can rein in uncontrolled costs, even when experience and many studies confirm the opposite. These examples make the point:
• Continuous escalation of prices and costs by drug and medical device manufacturers, hospitals, physicians and other members of the medical-industrial complex.
• A nine-year study by the Community Tracking Study of 12 major U. S. health care markets found these four barriers to efficiency and quality of care: (1) providers' market power; (2) absence of efficient provider systems; (3) employers' inability to push the system toward efficiency and quality; and (4) insufficient health care competition, (3) (Nichols, L et al. Are market forces strong enough to deliver efficient health care systems? Confidence is waning. Health Aff (Millwood) 23 (2): 8-21, 2004))
• Consolidation among providers limits choice and competition in many markets. (4) (Kronick, R, Goodman, DC, Weinberg, J, Wagner, E. The marketplace in health care reform. The demographic limitations of managed competition. N Engl J Med 328: 148, 1993)
• A 2006 AMA study found near-monopolies by private insurers in 95 percent of HMO/PPO metropolitan markets. (5) (Associated Press. Study: Health insurers are near monopolies. April 18, 2006)
4. The private insurance industry, already dependent on various kinds of government subsidies, does not offer enough value to retain its 1,300 insurers.
These are the main reasons that the present multi-payer system should be replaced by a not-for-profit single-payer financing system: (6) (Geyman, JP. Do Not Resuscitate: Why the Health Insurance Industry is Dying, and How We Must Replace It. Common Courage Press, 2009)
• continued inflation of health care costs, which insurers cannot control.
• growing unaffordability of premiums and health care.
• decreasing coverage of policies with often unaffordable out-of-pocket costs.
• growing economic insecurity and hardship, even for the insured.
• shrinking private insurance markets and cutbacks in public markets.
• adverse selection in shrinking risk pools.
• increasing profits despite declining enrollments (e.g. Aetna profits up by 42 percent in second-quarter 2010). (7) (Veiga, A. Aetna posts higher 2Q profit up 42 percent. Associated Press, July 28, 2010)
• Stockpiling large surpluses even while hiking premiums. (8) (Young, A. Consumer group: Insurers kept surplus while hiking premiums USA Today, July 22, 2010)
5. The Obama Administration has so far been unwilling to confront the special interests and address the real problems. After winning the 2008 election, with the Democrats taking both the House and Senate as well as the White House, the pragmatic and overly cautious incoming president did a 180-degree turn from this statement made five years previously to the Illinois AFL-CIO:
I happen to be a proponent of a single payer universal health care program… (applause)…I see no reason why the United States of America, the wealthiest country in the history of the world, spending 14 percent of its Gross National Product on health care, cannot provide basic health insurance to everybody….But as all of you know, we may not get there immediately. Because first we have to take back the White House, we have to take back the Senate, and we have to take back the House. (9) (Obama. Speech to the Illinois AFL-CIO, June 30, 2003)
As a result of the deals the president made with corporate interests through their voluntary, unenforceable pledges, he joined forces with them in gaining political support for "reform". But this "alliance" with corporate interests assured that the legislative outcome would meet corporate interests more than those of ordinary Americans. And it leaves the president with little clout to rein in these interests, since he now depends on the PPACA to work. It would be a PR and political disaster if more insurers leave the market, more physicians refuse to see newly "insured" patients, and growing numbers of patients and families see affordable care and choice as disappearing. The state of Maine has already asked the federal government to waive its medical loss ratio (MLR) requirement, fearing disruption of the individual and small business market. (10) (Pear, R. Covering new ground in health system shift. New York Times, August 3, 2010: A13)
6. Policy makers and politicians ignored the lessons of history in attempting incremental "reforms" that had already failed over the last 30 years. Improved access and containment of health care costs have been addressed by many initiatives over the last 30 years, including managed care, employer and individual mandates, tax credits, association health plans, chronic disease management, pay for performance, and expansion of health information technology. Although all have failed to redress these two system problems, they were included in one way or another in the PPACA as more fundamental financing reform, such as shifting to a not-for-profit financing system, was intentionally kept off the table for political reasons.
In sum, the medical-industrial complex won this last battle over health care reform. Robert Kuttner, co-founder of The American Prospect 20 years ago, reminds us of the political challenge ahead: President Obama took office at a moment when free-market ideology, Wall Street hegemony, and conservative incumbency were thoroughly disgraced by recent events. But Obama has not yet been able to translate that failure into a durable progressive counterrevolution. (11) (Kuttner, R. A 20-year odyssey. The American Prospect 21 (7): 3, 2010)
Adapted in part from Hijacked! The Road to Single Payer in the Aftermath of Stolen Health Care Reform, 2010, with permission of the publisher Common Courage Press.
Fw: Disparities blog on cancer
From: John Geyman <jgeyman@u.washington.edu>
To: Roger Bulger <roger.bulger@yahoo.com>
Sent: Wed, August 11, 2010 11:25:47 PM
Subject: Re: Disparities blog on cancer
8/09/2010
the tenth Seminar began yesterday and ends next saturday, August 14
7/26/2010
the Eighth Seminar has begun and the Ninth will begin on August first
7/20/2010
an alternate route to posting
7/18/2010
Seventh Seminar Open for comments and posts
7/14/2010
Bill Straub has a new post for the fifth seminar
"Somewhat belatedly in this segment, I would like to introduce the notion of bringing retired physicians and nurses back into the workforce as a partial solution to the staffing crisis facing community health centers (CHCs)as they brace to provide access for upwards of fifteen million of the thirty-two million Americans to be covered by ACA by 2014. For the current 8000 CHC sites to meet this challenge will require doubling their capacity and staff, amounting to an additional 15,000 physicians and 11,000 nurses.
Increasing the supply from the educational pipeline; further increasing the use of nurse practitioners and physician assistants; and doubling the contribution from the National Health Service Corps are all necessary, but likely insuffeicient to meet the 2014 need.Tapping into the approximately 200,000 retired physicians (40% with primary care backgrounds)and 800,000 retired nurses offers one partial and temporary solution, until an adequate workforce can be stabilized.
Our (American Health Initiative) experience over the past five years, recruiting retired health professionals for volunteer service in Free Clinics, suggests that this valuable resource could be tapped to help ameliorate the coming CHC workforce crisis. Recently retired clinicians have much to offer and many are seeking opportunities to stay professionally and mentally active in such constructive and collegial efforts."
7/10/2010
The Sixth Seminar begins tomorrow, July 11, 2010
7/03/2010
the Fifth Seminar begins tomorrow
6/27/2010
The fourth Seminar begins today 27 June
6/20/2010
Third Seminar-Specific Health Care Disparities
I am aware that policy thinking and assessment tools make it possible to look at data from urban vs rural polulations, but since we have access to the District of Columbia and LA data, whether city to city variation has been noted and re rural regions whether region to region variation is sufficient to advocate more strongly than we have heretofore, the importance of reinforcing local initiatives to target the most important disparities.
6/16/2010
Unequal Burdens and Unheard Voices: The Need for Minority Aging Research and Policy
The Need for Minority Aging Research and Policy
Carmen R. Green, MD, and Gilbert S. Omenn, MD, PhD
University of Michigan
"The moral test of government is how it treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; and those who are in the shadows of life, the sick, the needy and the handicapped."
Hubert H. Humphrey
Health disparities policymaking and health disparities research need a special focus on the elderly. The Annual Older Americans’ Month was celebrated for the first time in May 1963. At that time 17 million Americans had reached their 65th birthday; today, nearly 40 million Americans have reached their 65th birthday.(1) Despite numerous references to an aging America, there is less attention directed at who are aging. Currently, 16.1% of all Americans 65 years or older are minority elders, with the majority being African-American. Looking into the crystal ball to the year 2050 reveals a darker and older America with an 81% increase of white elders and a 217% increase in minority elders.(2) Estimates project increases of 128%, 301%, 322%, and 193% for African Americans, Asian Americans, Hispanic Americans, and American Indian and Alaska Native elders respectively.(2) Among the old-old, 85 years of age and older, the relative growth will be less due to lower survival.(3) Elderly women will continue to significantly outnumber elderly men, making aging a particularly important women's health issue.
Racial and ethnic minorities are disadvantaged when compared to whites on most major health indices.(4, 5) Increasing survival after cancers, strokes, and other catastrophic illnesses and injuries has been less among minority elders. The medical and technological advances that have yielded healthier aging for whites have not been applied as successfully for other populations, thus contributing to health and health care disparities. Overall, minorities have increased morbidity, shortened lives, and lower self-reported health even when their health insurance status is similar to whites.(4, 6) Furthermore, minority elders face significant barriers to quality health care because of more limited financial resources and diminished health care access and follow up.(7)
The National Institute on Aging has funded six National Resource Centers for Minority Aging Research.(8) These flagship programs have served an important mission through their commitment to 1) including minority elders in aging research designed to reduce and eliminate disparities, 2) developing the methodology and measures to accurately assess health and predict important outcomes in minority elders, and 3) developing investigators committed to careers in minority aging research. The literature suggests minority elders struggle with greater physical disability and functional limitations.(9) Interdisciplinary scholarship and social research focusing on subpopulations of the aging minority (e.g., in rural and inner city areas) and addressing economic, housing, and urban planning issues is critically important.(10) Local, state, and federal funding for minority aging research, including facilitation of public/private partnerships, is needed. Substantial, sustained efforts to improve the health and well-being of these understudied and vulnerable populations can help the nation’s health status and hopefully 3
our international standing. Both translation of what is known and research on open issues to gain useful new knowledge are needed for more effective policy initiatives in an age- and culturally-sensitive context.
Of course, the determinants of health in the elderly do not begin to act only after reaching age 65. Nevertheless, it is never too late to practice healthier behaviors, promote better health, and prevent chronic and acute diseases. Thirty years ago we showed that the reduction in relative risk from stopping smoking was just as great in people 65 and older participating in the Coronary Artery Surgery Study population (CASS) as among 55-64 and 35-54 year-olds. Moreover, due to the much higher rates of heart attacks and deaths, the absolute benefit in lives saved was far greater per 1000 persons among the elderly.(11) This result was so striking that it was highlighted in the President’s Budget presented to Congress for FY91.
A robust, innovative research agenda to promote successful aging for all should utilize a representative and diverse population across the life span with translational research from bench to bedside and clinic to community to policy--engaging laypersons, clinicians, researchers, and policymakers.(12, 13) Emerging issues that threaten quality of life and public health for millions of Americans such as pain and Alzheimer’s Disease, have received increased awareness and new legislation designed to address knowledge deficits and research funding (e.g., National Pain Care Policy Act of 2009 and the Comprehensive Alzheimer’s Breakthrough Act of 2009), but translation to broader communities is lacking.(13-15) Effective and highly respected participants from the community under study is also critical.(16) In addition, health policy research should work in concert with bench, bedside, and community researchers using4
community-based participatory research principles to address the most perplexing issues (e.g., aging in place, end of life and palliative care) in an interdisciplinary fashion.
Policy initiatives focusing on minority aging are sorely lacking. Often the special implications for minority elders are not even considered. The impact on and discussions including minority elders have attracted minimal attention, for example, during the recent economic meltdown, health care reform debates, and rhetoric about death panels. All in all, there seems to be a continuing failure to recognize that the overall well-being of America is intimately intertwined with the health status of those who are vulnerable, carry an unequal burden, and tend to be unseen and unheard. This situation continues despite increased awareness about increasing social and economic inequalities, clinician variability in decision-making based upon age, race, gender, and class, and many health professionals’ reports of feeling poorly equipped to address the needs of a diverse society in a culturally competent manner.(17, 18) These last points emphasize the importance of workforce preparation, on-the-job training, and diversity issues. For an aging and diverse society, there is a disconnect between such policy goals as the Healthy People 2010 metrics and the fragile academic pipeline, research funding, and service programs to help our country achieve Healthy People 2020 objectives, especially for older adults in reducing functional limitations.(19, 20)
As we turn our attention to implementing the 2010 healthcare reform legislation, we must commit to address health disparities at all ages from children to the elderly. Health promotion, disease prevention, improvements in the health care delivery system, and fundamental enhancements of the social and economic determinants of health all require a health disparities
lens. Nowhere is that lens needed more than in research, policy, and community engagement for minority elders.
REFERENCES
1. Projections of the Population by Age and Sex for the United States: 2010 to 2050 (NP2008-T12) [database on the Internet]2008. Available from: http://www.aoa.gov/AoARoot/Aging_Statistics/index.aspx
2. Projected Population by Single Year of Age, Sex, Race, and Hispanic Origin for the United States: July 1, 2000 to July 1, 2050 (NP2008_D1) [database on the Internet]2008 [cited June 10, 2010]. Available from: http://www.aoa.gov/AoARoot/Aging_Statistics/future_growth/future_growth.aspx#hispanic.
3. Interim State Projections of Population for Five-Year Age Groups and Selected Age Groups by Sex: July 1, 2004 to 2030 [database on the Internet]2005 [cited June 10, 2010]. Available from: http://www.aoa.gov/AoARoot/Aging_Statistics/future_growth/future_growth.aspx.
4. Institute of Medicine. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. Smedley BD, Stith AY, Nelson AR, editors. Washington, DC: The National Academies Press; 2002.
5. Green CR, Anderson KO, Baker TA, Campbell LC, Decker S, Fillingim RB, et al. The Unequal Burden of Pain: Confronting Racial and Ethnic Disparities in Pain. Pain Medicine. 2003;4(3):277-94.
6. Satcher D. The Unequal Burden of Cancer. Cancer. 2001;91(S1):205-7.
7. Green CR, Ndao-Brumblay SK, West B, Washington T. Differences in Prescription Opioid Analgesic Availability: Comparing Minority and White Pharmacies across Michigan. The Journal of Pain. 2005;6(10):689-99.
8. Resource Centers for Minority Aging Research. [cited 2010 June 10, 2010]; Available from: http://www.rcmar.ucla.edu/centers.php.
9. Whitfield KE. Closing the gap: Improving the health of minority elders in the new millennium (p. ix). Washington D.C.: The Gerontological Society of America; 2004.
10. Committee on Facilitating Interdisciplinary Research, National Academy of Sciences, National Academy of Engineering, Institute of Medicine. Facilitating Interdisciplinary Research. Washington, D.C.: The National Academies Press; 2004.
11. Hermanson B, Omenn GS, Kronmal RA, Gersh BJ. Beneficial six-year outcome of smoking cessation in older men and women with coronary artery disease. Results from the CASS registry. New England Journal of Medicine. 1988;319(21):1365-9.
12. Curry L, Jackson J. The science of including older ethnic and racial group participants in health-related research. Gerontologist. 2003 Feb;43(1):15-7.
13. Green CR. The Healthcare Bubble through the Lens of Pain Research, Practice, and Policy: Advice to the New President and Congress. Editorial. The Journal of Pain 2008;9(12):1071-3.
14. Capps L. H.R. 756: National Pain Care Policy Act of 2009. 2009.6
15. Mikulski B. S. 1492: Alzheimer's Breakthrough Act of 2009 2009.
16. Omenn GS. Caring for the community: The role of partnerships. Academic Medicine: Journal of the Association of American Medical Colleges. 1999;74(7):782-9.
17. Weissman JS, Betancourt J, Campbell EG, Park ER, Kim M, Clarridge B, et al. Resident physicians' preparedness to provide cross-cultural care. Jama. 2005 Sep 7;294(9):1058-67.
18. Schulman KA, Berlin JA, Harless W, Kerner JF, Sistrunk S, Gersh BJ, et al. The Effect of Race and Sex on Physicians' Recommendations for Cardiac Catheterization. The New England Journal of Medicine. 1999;340(8):618-26.
19. U.S. Department of Health and Human Services. Healthy People 2020, Objectives New to Healthy People 2020, OA HP2020–1: Reduce the proportion of older adults who have moderate to severe functional limitations Washington, D.C.2009.
20. U.S. Department of Health and Human Services. Healthy People 2020, Objectives New to Healthy People 2020, OA HP2020–8: Increase the proportion of older adults with reduced physical or cognitive function who engage in light, moderate, or vigorous leisure-time physical activities. Washington, D.C.2009.
6/14/2010
Health is a top priority for Americans, as is often shown in polls commissioned by Research!America and others. In the latter 20th century the Congress invested in that priority, and that investment paid off. Stunning advances made a reality of many Americans’ hopes for longer, better life and a more productive life for ourselves and future generations. From 1950 to 2000, nearly one million early deaths related to coronary disease have been averted, bringing an economic return of $3.6 trillion. To achieve that, the investment in NIH by each American taxpayer has been around $3.70 per year for 30 years. Seat belt laws and public education campaigns about putting babies to sleep on their backs have saved hundreds of thousands of American lives from car accidents and SIDS.
But while this is cause for celebration, we cannot take this pace of progress for granted, and we have much to do to achieve the hope of better health for all Americans.
In Advocacy in Health Care, former Congressman Paul G. Rogers (1921-2008), Research!America’s former chair emeritus, wrote, “We do not hear much in Washington these days about protecting the vulnerable.” It is a sad commentary that his statement is as true today as when he wrote it in 1986.
According to United Health Foundation’s 2009 America’s Health Rankings™ report, the average mortality rate for African-Americans far exceeds that for Caucasians or Hispanics. The CDC found similar disparities in cancer rates. Americans see this as unacceptable: In a 2010 poll commissioned by Research!America, 83% said it is important to conduct research to understand and eliminate these differences and achieve health equity.
Paul Rogers was renowned for saying, “Without research, there is no hope.” Research brings hope for solutions to diseases that currently have none. It tells us which treatments work for which patients. Yet for hope to make an impact, it must inspire action and commitment to a purpose. Health disparities cannot be eliminated without a sustained, significant investment in research.
The hope for health equity is consistent with Americans’ fundamental view that all are created equal. It is long overdue that we make that hope a reality, but without research, there is no hope. We must fund our health research agencies—NIH, CDC, AHRQ, NSF and FDA—at a strong sustained level, to better understand disparities and find new solutions through personalized medicine and prevention. We must fully engage the public as partners in their own health and agenda-setting for research; all health is local, and the public has an invaluable role to play in identifying factors in their communities that contribute to disparities. Lastly, if you are reading this, you likely already have an interest in and knowledge of health disparities. Seek out like-minded organizations or individuals as partners in the fight to end disparities. You may find partners in unexpected places. Educate yourself about ways to tell your elected officials that health equity is important to you and to most Americans. Visit www.researchamerica.org/speaking_out for resources to help.
6/13/2010
Seminar 2 begins now...
6/12/2010
5/07/2010
Third Seminar: Stage Set
To go from the sublime and philosophical to some significant specifics, we now ask our experts to speak to some tangible big ticket items, both in terms of successes and regressions in Cancer, Maternal and Infant Care, Diabetes and Nutrition, and Hypertension and Heart Disease, and mental health/substance abuse. We hope our expert posts will provide pertinent references as well as examples of successes and failures over the past decade that point to relevant policy interventions for the next decade.
Commentators (invited) are Dr. John Geyman (author of “The Cancer Generation”, Common Courage Press, 2009), Dr. Henry Foster, Dr. Rodgers NIDDK, Dr Richard Williams.
First Seminar: Stage Set
As a prelude to this first seminar on health disparities policy, I hope all participants and readers will envision our primary audience as those people who are already working in the field of disparities reduction, either through research or clinical work or community public health efforts. These are people who are not primarily policy wonks but rather find it important for them to gain some degree of policy sophistication so that they have a more realistic platform for appraisal of our situation and for advocacy for important changes or improvements. This our goal is to enlighten those who are listening or reading our posts either through our insights or the questions we have raised. Participants can also be helpful if we can pass along through our posts, the best references or sources we have found most useful.
As an example at the outset here, I would offer my own impression that the journal Health Affairs is the monthly journal I would recommend to persons interested in following developments at the interface of health/health disparities policy, and health care. In the April 2010 issue, the focus was on Health IT, while the May 2010 issue concentrates on the reinvention of primary care with work force manipulations and innovative new team models for providing care for the expected expanding patient base. At the same time, professional medical and nursing journals (especially those with wide public exposure like the New England Journal of Medicine and the Journal of the American Medical Association) are providing fewer, but nonetheless excellent health policy articles which sometimes shape or reflect important movement.
I am old enough to remember quietly celebrating when Dr. Julius Richmond, President Carter’s choice for US Surgeon General, initiated the Healthy People Program, through which specific goals for improvement of our population’s health status were established and data was collected and made available for all to see concerning our progress toward our national health goals Through the years, this data-driven instrument has become more and more useful, refined and precise. We, in 2010 are able to look back at the third decade of these public records and will have a fresh look at our nation’s progress towards the elimination of health disparities.
In the May 6, 2010 issue of the NEJM, the lead article is by MH Koh, Assistant Secretary for Health, US Department of Health and Human Services. Dr. Koh concisely presents the history of the Healthy People Program, summarizes the results of the last decade and prefigures the official plan or vision for the year 2020. Dr. Koh says, As part of Healthy People 2010, ten leading health indicators were selected with input from the Institute of Medicine as high-priority areas for motivating societal action. These indicators provide both a concise summary of major, preventable health threats and a gateway into the broader framework; preliminary data show progress for about half of the indicator objectives.”
Dr. Koh gives as an example of a significant gain in the fight against health disparities is the progress in immunization rates for infants 19 to 35 months of age, up from 72.8% in 1998 to 80.6% in 2006, with great progress in shrinking racial and ethnic differences. On the down-side, we have lost ground in weight control and diabetes both in the population as a whole and within virtually all racial groups.
The ten leading health indicators Healthy People 2010, are: Physical activity; Tobacco use; Responsible sexual behavior; Injury and Violence; Immunization; Overweight and obesity; Substance abuse; Mental health; Environmental quality; Access to health care. (As an aside, it gave me great pleasure, having served as the chair of that IOM committee which recommended the list of Leading Indicators, to realize that the effort did not go in vain and that it is possible for people to come together to produce work that in turn influences public policy and seems to still be of some continuing value.)
The two overarching goals of the 2010 program were to increase the quality and years of life and to reduce disparities: the first was achieved; the second wasn’t. Of interest in Dr. Koh’s paper was his presenting some hints about the 2020 plan which will be presented in six months or so. Dr. Koh says, “It reaffirms the two overarching goals from the past decade but adds two more: promoting quality of life, healthy development, and healthy behaviors across life stages; and creating social and physical environments that promote good health.” This means that there will need to be a stretch beyond traditional health sectors to achieve these broader social goals for health, issues sure to spark important debate.
At this initial seminar, I am pleased to identify three very important books exploring the breadth and depth of health disparities, whose authors have been invited to comment early if they would in this seminar and of course as they are moved to in subsequent seminars. They are as follows: David Satcher MD, PhD and Rubens Pamies MD, Multicultural Medicine and Health Disparities, McGraw Hill, 2006; Brian Smedley, Adreinne Stith and Alan R. Nelson, Unequal Treatment – Confronting racial and ethnic disparities in healthcare, Institute of Medicine national Academies Press, 2003; Richard Allen Williams, MD, Eliminating Healthcare Disparities –beyond the IOM Report, Humana Press, 2007.
For the next seven days, the seminar is open for anyone who has registered to add their comments, references and insights, all of which will be archived (saved) at the end of the week.